The Alzheimer Society of Ireland (The ASI) has launched its 2026 Experience of Dementia in Ireland Survey, inviting people living with dementia and family carers to share their experiences, needs, and priorities.
With the number of people living with dementia continuing to rise, the survey aims to shine a light on what life with dementia is really like today. The findings will help inform the development of services, advocacy, research, and policy.
This year’s survey explores the services people use, their health and wellbeing, and the day-to-day experiences that shape life with dementia. It also looks at community support and the impact of the cost of living.
Family carer Tony McIntyre, who lives in Dublin, is encouraging people to share their experiences. “When you’ve met one person with dementia, you’ve met one person with dementia – everyone’s journey is different. That’s why it’s so important that people share their own experience. By taking part in this survey, you’re helping to make sure those real, human stories are heard. Your voice can make a difference to others living with dementia,” says Tony, who cares for his wife Mary, who lives with Alzheimer’s disease.
Dr Laura O’Philbin, Research and Policy Manager at The ASI, says: “Every person’s experience of dementia is unique, and this survey gives us a meaningful way to capture those realities. The insights gathered will directly shape our work for the years ahead and help us improve supports for families.”
How to Take Part: Two surveys are available: one for people living with dementia and one for family carers or supporters. You can take part online, by telephone, or by post.
Online: Visit www.alzheimer.ie | Telephone: Call 1800 341 341 to request a call back from the Research Team | Post: Request a paper copy by calling 1800 341 341 or emailing [email protected]. A stamped addressed envelope will be provided.
Who Can Take Part? Anyone living with any form of dementia. Adults aged 18+ who provide unpaid support, including family members, friends, or neighbours. Paid care professionals should not complete the survey unless they also provide unpaid care to a loved one.
